There’s not enough in Australia for NMO specific conditions. There needs to be more treatment options, better funding and more support, I think.

My message to the Health Minister would be, just because there’s not a lot of people with the disease in the country, it still warrants research money.

Most of my information comes through Facebook, on the NMO Australia site and anything related to that, like they’ll put up studies and anything that’s going ahead.

The biggest one was to get onto the support page, their NMO support page on Facebook with the registered nurses and just listening to everyone else, and seeing what everyone else was going through, that’s where I got all the information from.

I think we need to get some of the newer drugs on the PBS and easier access for people with NMO.