“I knew nothing. If I had of known, maybe I could have prevented it.”
“Like everything, I didn’t know much about it at all. They probably told me but with everything else you have to take in it didn’t really register. It probably should be…I mean it was a pretty frightening experience but they don’t really tell you in advance that it could happen”
“I didn’t even know the kidneys controlled it to be honest. Not much. I knew kidneys basically filtered urine but that’s about it. I didn’t know that it affected potassium”
“What we do need though is some more everyday-type information, just really practical advice on what to eat and what we should be looking for.”
PEEK studies were conducted in CHF and CKD. Within these studies, a number of participants that had experienced hyperkalaemia were identified, and a sub-set of questions were asked in relation to this experience. This report therefore aims to characterise the experience of people who have been treated for acute hyperkalaemia.