

Personal Experience, Expectations and Knowledge (PEEK) studies use a single protocol. They are mixed methodology studies including an online questionnaire and structured interview. This approached is used as our aim is to have routine and proactive collection of patient experience and expectation data by an independent agency. All reports are publicly available and collectively, this results in a repository of patient experience data, with transparent and systematic presentation of results. The program is the result of 2 years protocol and feasibility testing. As at 2024, 2,139 patients have shared their experience through the PEEK program. PEEK has a multi-dimensional protocol that can be cross-validated and covers a holistic range of domains. Participants in PEEK studies have the chance to reflect on everything they have experienced, then, acknowledging that they hold their own expertise, we ask them what their expectations and recommendations are for the future. This gives us all the direction we need to make decisions about treatment, care, information and communication.
NUMBER OF PARTICIPANTS (CUMULATIVE)

DISEASE AREAS REPORTED ON
Amyloidosis
Asthma
Atopic dermatitis
Bladder cancer 2018
Bladder cancer 2022
Breast cancer 2018
CAR-T treatable blood cancer
Chronic heart failure
Chronic kidney disease
Chronic lymphocytic leukaemia
Chronic spontaneous urticaria
Crohn’s disease/Ulcerative colitis